This is a blog about epilepsy. I have lived with seizures for 25 years now and I want to share my experiences to allow others with epilepsy a chance to compare their experiences to mine and to allow those without epilepsy to understand further the condition and how it effects one. I had the VNS device implanted 4 years ago and have posted on that extensively. Please feel free to comment and I will try to respond.
Tuesday, October 31, 2006
A little embarrassed...
I was walking around the 3rd floor of my office doing inventory of computers when I saw one of the cubes had the name plate of a person that is normally on the 2nd floor. She was not there, so I asked one of her neighbors when she moved to 3? The lady said, "She has been up here for over 2 weeks. Don't you remember, you and Chet moved her equipment up here?" ... no I did not remember... that was the day of my seizure at work. Moving the lady was the last thing I did before I had my seizure. I was a bit embarrassed at the situation, but played it off like it was no big deal. It was kind of scary though... my memory used to be very very bad as opposed to just sub-standard. I hope to never get to that state again...
Off Topic - Stupid Blogger
Blogger is killing me today. I can't seem to upload any pictures! It keeps failing before the picture is loaded. Arrrggg!
Friday, October 27, 2006
Talking about Epilepsy
I've had to answer a lot of questions about epilepsy over the last week. Sometimes I feel comfortable talking about it... sometimes not so much. I'm not sure why. Obviously I'm willing to write about it in detail for over a year now... I think it has to do with having to admit weakness. It may sound silly, but it isn't always easy to acknowledge that you have a condition that renders you completely helpless at times. And maybe it is a bit embarrassing to have your co-workers find you in that situation... I deal with it and try to be a good role-model and spokesperson for people with epilepsy... It's just not always easy.
Tuesday, October 24, 2006
No more late nights...
Well, Dr. Dean said that it was important that I get more rest in order to avoid having more seizures. This simple solution is a bit harder to implement than might seem at first glance. First, I have been accustom over the last year or so to getting about 6-7 hours a sleep per night during the week. Now I am going to try for 8. This leaves me cutting out about 10 hours of stuff per week....My plan is to go to bed at 10 and get up at 6....
So what do I have to cut. Well, it means no more Daily Show at 11 P.M. and no more Colbert Report at 11:30 P.M. No more Countdown With Keith Oberman at 12:00 A.M. No more Missing at 10:00 P.M. and I got to hit the sack right after CSI goes off. Finally, I'll be missing the last hour of WWE: Monday Night Raw.
Solutions... well, I'm definitely going to have to make some adjustments so I can get in the important shows... So, I'm going to try to watch the Daily Show rerun and 1st run Countdown at 8:00 P.M. although I may miss a bit of each, I should definitely be able to catch any of Olbermann's excellent Special Comments, such as this one on Fearmongering or this one on Death of Habeus Corpus. Of course, if I can't watch the show, I can always catch the Special Comments clips on Crooks and Liars.
The most important thing is that I get more sleep. I really don't want any more seizures. This last one beat me up pretty bad. Glasses got smashed up along with my face. Ended up in the hospital for about 3.5 hours getting X-Rays... Not fun at all...
So what do I have to cut. Well, it means no more Daily Show at 11 P.M. and no more Colbert Report at 11:30 P.M. No more Countdown With Keith Oberman at 12:00 A.M. No more Missing at 10:00 P.M. and I got to hit the sack right after CSI goes off. Finally, I'll be missing the last hour of WWE: Monday Night Raw.
Solutions... well, I'm definitely going to have to make some adjustments so I can get in the important shows... So, I'm going to try to watch the Daily Show rerun and 1st run Countdown at 8:00 P.M. although I may miss a bit of each, I should definitely be able to catch any of Olbermann's excellent Special Comments, such as this one on Fearmongering or this one on Death of Habeus Corpus. Of course, if I can't watch the show, I can always catch the Special Comments clips on Crooks and Liars.
The most important thing is that I get more sleep. I really don't want any more seizures. This last one beat me up pretty bad. Glasses got smashed up along with my face. Ended up in the hospital for about 3.5 hours getting X-Rays... Not fun at all...
Monday, October 23, 2006
Seizure Recovery
It's been a couple of days since Scott's seizure. Scott had an EEG performed last Friday and we met with Dr. Dean that same day. Dr. Dean stated that Scott's tendency for having a seizure increases when he is tired or sleepy. She stated that Scott needs to get more and better quality sleep. So we stayed in all weekend and Scott rested. He returned to work today but has turned in early as he is still a bit tired. Hopefully, his new sleep schedule will reduce the chance of him having more tonic clonic seizures.
Thanks to everyone for your continued thoughts, prayers and support.
Christa
Thanks to everyone for your continued thoughts, prayers and support.
Christa
Thursday, October 19, 2006
Tonic Clonic at the Office
Scott suffered a tonic clonic seizure at the office this evening. He was beat up pretty badly when he fell. We just returned home from the ER. He is a bit sore and sprained his neck during the seizure but did not suffer a concussion. The ER physician instructed Scott not to work tomorrow and instead to follow-up with Dr. Dean at the Epilepsy Institute. I will post more tomorrow to let everyone know how Scott is doing.
Christa
Christa
Thursday, October 12, 2006
Dr. Apt.
Had my regular VNS apt with my Dr. Actually, I just saw Nurse Cindy who does the VNS interrogation. Everything checked out fine. I stayed with my same settings as the device seems to be working quite well! (thx Cyberonics!)
My current settings: .75 mAmps, 250 pulse width, 20 hz, 1.8 frequency/off time.
My current settings: .75 mAmps, 250 pulse width, 20 hz, 1.8 frequency/off time.
Sunday, October 08, 2006
Long Time no Blog
To my loyal readers... sorry. Been busy with a multitude of other fun stuff... uh ... like work & stuff. Good news though! No seizures!
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