This is a blog about epilepsy. I have lived with seizures for 25 years now and I want to share my experiences to allow others with epilepsy a chance to compare their experiences to mine and to allow those without epilepsy to understand further the condition and how it effects one. I had the VNS device implanted 4 years ago and have posted on that extensively. Please feel free to comment and I will try to respond.
Friday, June 02, 2006
Epilepsy Activism
Christa and I met with Dr. Dean today and discussed a number of different projects we would like to start in order to help people with epilepsy. About a year or so ago, Dean moved the Epilepsy Institute of NC to a new facility. In addition to Physician's offices, she also got enough room for a auditorim and several other rooms that can be used for outreach and educational purposes. We are quite excited and are looking forward to working with her to start some support programs for the region's eplepsy community.
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2 comments:
So, you are in NC? I have a 5 year old with Epilepsy and we've found it rather suprising how many there are in the triangle area with it, but yet there seems to really be no support organization - no Ep Foundation office or anything.
In any case, you have a new reader.
Thanks for stopping by! I checked out your new webiste on epilepsy:
http://extrasparkle.blogspot.com/
I'll put up a link on my blog list today! As for the support organizations in NC... well, that is a long story not well suited for blogging. I'll contact you about it.
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