We got our group together today and went to a health fair in Lexington. It went extremely well. The five of us distributed a wealth of information about epilepsy. We spoke with at least 200 people.
I think what surprised me the most was how many people either had someone in their immediate family or knew someone with epilepsy; a boss, friend, co-worker, student.. I was also surprised at how many people we met that had epilepsy. It was fantastic to share experinces with them and speak about different medicines and treatments avaiable.
We met a girl that had been diagnosed with epilepsy less than a year ago. She was a bit shy about speaking about it, but Christa was able to get her to open up and have a good conversation with her. It was a very hot day and she was worried about having a seizure. We were all glad that she didn't let this stop her from having a go at the climbing wall.
We got our group together today and went to a health fair in Lexington. It went extremely well. The five of us distributed a wealth of information about epilepsy. We spoke with at least 200 people.
I think what surprised me the most was how many people either had someone in their immediate family or knew someone with epilepsy; a boss, friend, co-worker, student.. I was also surprised at how many people we met that had epilepsy. It was fantastic to share experinces with them and speak about different medicines and treatments avaiable. 
We met a girl that had been diagnosed with epilepsy less than a year ago. She was a bit shy about speaking about it, but Christa was able to get her to open up and have a good conversation with her. It was a very hot day and she was worried about having a seizure. We were all glad that she didn't let this stop her from having a go at the climbing wall.
1 comment:
Minclem!
Glad to hear your daughter was able to find someone to speak with about her VNS... the sensation it causes is definitely unique. And the reaction you get from others when you disclose that you are have a VNS can range from excited interest to barely masked revulsion.
As for providing support and promoting awareness, we are looking for more people to help bring awareness and educate others about epilepsy. The next event we are planning is the Honey Bee Festival in Kernersville. If you, your daughter, or husband would like to come & help, please contact us. In addition, we hold a monthly meeting at the Epilepsy Institute. Interestingly enough, half of us have VNS implants, and the other half are caretakers. Check out our website for more information:
www.epilepsysupportnc.org
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