Living With Epilepsy

This is a blog about epilepsy. I have lived with seizures for 25 years now and I want to share my experiences to allow others with epilepsy a chance to compare their experiences to mine and to allow those without epilepsy to understand further the condition and how it effects one. I had the VNS device implanted 4 years ago and have posted on that extensively. Please feel free to comment and I will try to respond.

Saturday, March 18, 2006

This is Your Brain on Drugs:

Top Notch article on epilepsy and anti-epileptic drugs (AED). This article pretty much explains in concise detail everything about epilepsy chemical reactions in a method that is understandable by the non-scientist. I highly recomend reading it. Below is a excerpt from the article:

Your doctor has probably explained how seizures occur: Nerve cells in your brain conduct electrical currents. Cells that are chemically or physically unstable may become too active, conduct too much electricity, and activate all the nearby nerves. If you picture a single fire cracker being set off in a fireworks factory, you'll get the picture. First a small explosion goes off, then a few neighboring fire crackers explode, then an ever-spreading wave of activity races through the entire factory.
Posted by Unknown at 3/18/2006 08:17:00 AM

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What is Epilepsy

Epilepsy is a disorder characterized by recurring seizures, which are disturbances in the electrical activity in the brain. Seizure types range from a momentary disruption of senses to a loss of consciousness and violent movements that can last for minutes. There is no single cause for epilepsy; however epilepsy can sometimes be associated with an illness, head injury, or abnormal brain development. It is estimated that 1-2% of the population has epilepsy, and of those, approximately two-thirds respond well to medical treatment.

My VNS Settings

  • Output Current: 1.25 mA
  • Signal Frequency: 20 Hz
  • Pulse Width: 130
  • Signal On Time: 21 sec
  • Signal Off Time: 0.8 min

Living with it...

  • Epilepsy.com
  • Epilepsy Connect
  • Epilepsy Foundation
  • First Aid
  • Responding to Seizure
  • First Aid Diagram
  • WikiEpilepsy
  • Epilepsy 101
  • Fit2beParents

Survivor's Guide to VNS

  • Part 1 - To Cut or Not to Cut
  • Part 2 - Activities
  • Part 3 - Does it work?
  • Part 4 - Can my cat hear it?
  • Part 5 - Pre-Surgery Shopping
  • Part 6 - Day of Surgery
  • Part 7 - Recovery
  • Part 8 - Steri-Strips
  • Part 9 - Device Sttings
  • Part 10 - Effective Settings

RNS Discussion

  • Part 1
  • Part 2
  • Part 3
  • Part 4
  • Part 5

Medical Links

  • CW Hemp
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Epilepsy Blogs

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  • Living Well With Epilepsy
  • Diary of a Space-bound Epileptic
  • Epilepsy C
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  • E. is for Epilepsy
  • A Stone Made Smooth
  • My VNS Experience
  • Coping With Epilepsy
  • Epilepsy Coming Out
  • LWE Homepage
  • Seize This
  • VNS - a Patient's Point of View
  • Living Well With Epilepsy

Informative Posts

  • VNS v. Airport Screening
  • Removing Steri-Strips
  • Fisrt Aid Diagram

Groups and Support

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