Friday, October 27, 2006

Talking about Epilepsy

I've had to answer a lot of questions about epilepsy over the last week. Sometimes I feel comfortable talking about it... sometimes not so much. I'm not sure why. Obviously I'm willing to write about it in detail for over a year now... I think it has to do with having to admit weakness. It may sound silly, but it isn't always easy to acknowledge that you have a condition that renders you completely helpless at times. And maybe it is a bit embarrassing to have your co-workers find you in that situation... I deal with it and try to be a good role-model and spokesperson for people with epilepsy... It's just not always easy.

2 comments:

Rusty said...

I am glad you share with folks even though it is hard. You may help someone who doesn't even know they need help yet - before you had seizures Matt had about 8 febrile seizures. When he had his first one at age 18 months I didn't know what to do and was sure he was going to die. Luckily my lack of knowledge didn't harm him, but still I wish I had known more. Mom

Christa said...

I can't begin to imagine how uncomfortable or difficult it is for you to open up about your condition. But I want you to know how very proud I am of you. I have seen first hand how much you have helped others by discussing your personal experiences living with epilepsy. You are such a special person and I love you more than words can say!

Christa