Wednesday, November 29, 2006

Verge of spiritual epilepsy

I always check out what people search for in order to get to this website. Recently someone got here by searching baptists epilepsy. Along with this site, a number of others were in the search including the letter to the editor of The Baptist Message. I have read over the message post several times, but am completely confused as to what the writer is trying to convey, much less how this relates to epilepsy....

Verge of spiritual epilepsy
August 25, 2005
Southern Baptists are on the verge of spiritual epilepsy! The reason is the decrease in baptisms.
When two people love each other, the normal result is children. Let us give up the fightin’ and learn to love each other. Then, the world will say, “Behold, how they love one another” rather than “Behold, how they fight.”
If we exalt Jesus and his love, he will draw the people.
Roy Remont
Hot Springs, Ark.

Monday, November 27, 2006

Jeanne A. Carpenter Epilepsy Legal Defense Fund

The Jeanne A. Carpenter Epilepsy Legal Defense Fund was created to assist people living with epilepsy with legal matters related to the condition.

They have a page where you can submit questions and review a FAQ about legal questions related to epilepsy. In addition, it appears that you can submit requests to have them help you find an attorney with experince with epilepsy matters.

Thursday, November 23, 2006

U.S. National Election v. Epilepsy

I got this info in an email update from the Epilepsy Foundation:

The Epilepsy Foundation is particularly pleased that Rep. Steny Hoyer (D-MD) has won election to be the House Majority Leader. Rep. Hoyer and his late wife Judy Hoyer (who once served on the Foundation's Board of Directors) have been steadfast champions for epilepsy and other disabilities. The Foundation will be counting on the Majority Leader to carry forward the agenda for restored funding the Centers for Disease Control and Prevention Epilepsy Program, restoration for the American with Disabilities Act and a commitment to research to find a cure for epilepsy.

The Foundation is also pleased that Ed Perlmutter (D-CO) will be serving in the House of Representatives. Representative Perlmutter has a daughter with epilepsy and has been an active member of the Epilepsy Foundation of Colorado.

Many other supporters of epilepsy from both the Democrat and Republican parties will remain in key positions like Senators Specter (R-PA) and Harkin (D-IA) and Representatives Ferguson (R-NJ), Lewis (R-CA), Wicker (R-MS) and Abercrombie (D-HI).

Wednesday, November 22, 2006

Cyberonics CEO & CFO Resign

The CEO and CFO of Cyberonics resigned. Cyberonics is the maker of the Vagus Nerve Stimulator. The resignations come in the midst of investigations into stock option back-dating. It is unclear how these investigations will affect the company... but stock prices are up. Check out the article.

Tuesday, November 21, 2006

Welcome United Kingdom!

I've gotten a ton of hits from the United Kingdom over the last few days, so I thought that I would show my gratitude and fly the Union Jack for a day!

The National Epilepsy Society is the largest epielpsy based chairty based in the UK. They have an epilepsy FAQ page that has a lot of information on a wide varity of epilepsy subjects. Has podcasts too!

Monday, November 20, 2006

No more seizures

I have not had any more tonic-clonic seizures since the last one I had at work. Since then, I printed out about 200 seizure first-aid cards and the director had them passed out to all of our staff. Hopefully if I have another one, my co-workers will be better prepared to take care of me. That, and another 200 people will have received detailed information about taking care of people who have sizures. I'm sure they will run into more than just me...

Thursday, November 09, 2006

The Connection of Mankind

I found this interesting poem on the Epilepsy Ontario website. Hope you enjoy.

The Connection of Mankind

By Daniel North

I remember chasing the aura
Being weakened at the limbs
In the fading world that surrounds
Memory is now living on empty whims.

Convulsing violently as the mind suffocates
Into the hand of a neurological reverie
Constantly running around in a field
It seems a lifetime since my mind was clear.

I can not remember half of my life
Where did I get this scar?
Must people run in fear
Just because of a cruel stigma?

I'm so petrified to look at the light
There's panic erupting in my chest
I need to overcome this disorder
As I juncture towards rest.

I've had so many EEG's and scans
What is real or what is a side effect?
We just need to forget the dark ages
And learn for mankind to connect.

Daniel North has more of his poetry online at his website: New Dawn Poetry

Wednesday, November 08, 2006

Increase seizure activity

In the last couple weeks since I had a tonic-clonic seizure, I have noticed that the number of aura-seizure events have increased some, although nowhere near as high as they were before my VNS. Possibly I have not been getting less seep than I should. Probably from taking my meds too late in the day. I'm going to definitly try to rest a lot this weekend.

I 'm going to do a week or so of the more "popular" posts on epilepsy over the next week. There are certain searches that people do that take them to a number of key posts. Re-posting will just make it a bit easier for them to find the info.

Tuesday, November 07, 2006


Although most polls in the East Coast of the US have closed, there are probably some still open in the West Coast. If you have not voted yet, please consider voting for a canidate that supports federal funding for epilepsy research.

Friday, November 03, 2006

As if I didn't have enough to do...

Ok... so I started another blog... on antique furniture. I know, not exactly exciting stuff. But I find it interesting. This blog is exclusivly on the furniture of George Hunzinger. So, unless you have some great desire to learn about American furniture manufacturers of the Victorian era, you may just want to skip it. If you do like pictures of cool antiques, click away!

Thursday, November 02, 2006

Dispelling Myths About Epilepsy

Yesterday I was asked a few questions about my epilepsy. One lady was concerned that the screen-saver on her computer may have caused me to have a seizure. Another lady thought that a piece of candy she gave me may have caused the seizure. Both fortunately were false. Although flashing lights within a certain Hz can cause some people to have seizures, the moving screen-saver she had would not meet the criteria. As for candy, I have not found any information on candy ever causing seizures.

Wednesday, November 01, 2006


Ok. At my wife's insistance, I set up my blog to run Feedblitz so she can get her posts via email. Anyone else may also to subscribe. :) Currently I have the sign-up thingy down on the far right sidebar. Please let me know if it does not work!