Living With Epilepsy

This is a blog about epilepsy. I have lived with seizures for 25 years now and I want to share my experiences to allow others with epilepsy a chance to compare their experiences to mine and to allow those without epilepsy to understand further the condition and how it effects one. I had the VNS device implanted 4 years ago and have posted on that extensively. Please feel free to comment and I will try to respond.

Friday, December 08, 2006

NeuroPace


I did a little additional research on Neuropace and their Responsive Neurostimulator (RNS) The company is located in California and they have one product, the RNS, that is currently being tested in clinical trials. This is the product description from their site:

The Responsive Neurostimulator (RNS) system is designed for the treatment of medically refractory partial epilepsy. The RNS system includes implantable and external products, accessories and tools.

Implantable components include the responsive neurostimulator (RNS) as well as depth leads and cortical strip leads. The RNS is a programmable, battery powered, microprocessor-controlled device that delivers a short train of electrical pulses to the brain through implanted leads. In treating epilepsy, the RNS is designed to detect abnormal electrical activity in the brain and respond by delivering electrical stimulation to normalize brain activity before the patient experiences seizure symptoms. The RNS is implanted in the cranium and connected to one or two leads that are implanted near the patient's seizure focus.


Check out the brief description of the clinical trials that have been done. The device looks very promising.

A brief overview of the company can be found here.
Posted by Unknown at 12/08/2006 09:18:00 AM

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What is Epilepsy

Epilepsy is a disorder characterized by recurring seizures, which are disturbances in the electrical activity in the brain. Seizure types range from a momentary disruption of senses to a loss of consciousness and violent movements that can last for minutes. There is no single cause for epilepsy; however epilepsy can sometimes be associated with an illness, head injury, or abnormal brain development. It is estimated that 1-2% of the population has epilepsy, and of those, approximately two-thirds respond well to medical treatment.

My VNS Settings

  • Output Current: 1.25 mA
  • Signal Frequency: 20 Hz
  • Pulse Width: 130
  • Signal On Time: 21 sec
  • Signal Off Time: 0.8 min

Living with it...

  • Epilepsy.com
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  • Epilepsy Foundation
  • First Aid
  • Responding to Seizure
  • First Aid Diagram
  • WikiEpilepsy
  • Epilepsy 101
  • Fit2beParents

Survivor's Guide to VNS

  • Part 1 - To Cut or Not to Cut
  • Part 2 - Activities
  • Part 3 - Does it work?
  • Part 4 - Can my cat hear it?
  • Part 5 - Pre-Surgery Shopping
  • Part 6 - Day of Surgery
  • Part 7 - Recovery
  • Part 8 - Steri-Strips
  • Part 9 - Device Sttings
  • Part 10 - Effective Settings

RNS Discussion

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  • Part 2
  • Part 3
  • Part 4
  • Part 5

Medical Links

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  • A Stone Made Smooth
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  • Epilepsy Coming Out
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  • Living Well With Epilepsy

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  • Fisrt Aid Diagram

Groups and Support

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