Living With Epilepsy

This is a blog about epilepsy. I have lived with seizures for 25 years now and I want to share my experiences to allow others with epilepsy a chance to compare their experiences to mine and to allow those without epilepsy to understand further the condition and how it effects one. I had the VNS device implanted 4 years ago and have posted on that extensively. Please feel free to comment and I will try to respond.

Friday, April 27, 2007

Middletown boy's life is a balancing act

This is a great article about a young boy named Peter and his experinces with epilepsy. Here is a brief snippet. Do check out the whole article at DelawareOnline.

As the children in the Tender Loving Kare kindergarten enjoyed a Valentine's Day party, 6-year-old Peter Serwik's mind went blank and he fell out of his chair.

That's the last time he had a seizure -- a vast improvement from his infancy, when Peter would experience about 30 a day.

Peter has epilepsy, a condition defined by seizures. On Wednesday, he'll address the nation's leaders on Capitol Hill as the Delaware representative for Kids Speak Up!, a national program in which children petition congressional leaders for money for various diseases and disorders.

"If we don't get [money] we'll have seizures every day," said the young Middletown resident.
Posted by Unknown at 4/27/2007 09:47:00 AM
Labels: epilepsy, Peter Serwik

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Got Epilepsy?

What is Epilepsy

Epilepsy is a disorder characterized by recurring seizures, which are disturbances in the electrical activity in the brain. Seizure types range from a momentary disruption of senses to a loss of consciousness and violent movements that can last for minutes. There is no single cause for epilepsy; however epilepsy can sometimes be associated with an illness, head injury, or abnormal brain development. It is estimated that 1-2% of the population has epilepsy, and of those, approximately two-thirds respond well to medical treatment.

My VNS Settings

  • Output Current: 1.25 mA
  • Signal Frequency: 20 Hz
  • Pulse Width: 130
  • Signal On Time: 21 sec
  • Signal Off Time: 0.8 min

Living with it...

  • Epilepsy.com
  • Epilepsy Connect
  • Epilepsy Foundation
  • First Aid
  • Responding to Seizure
  • First Aid Diagram
  • WikiEpilepsy
  • Epilepsy 101
  • Fit2beParents

Survivor's Guide to VNS

  • Part 1 - To Cut or Not to Cut
  • Part 2 - Activities
  • Part 3 - Does it work?
  • Part 4 - Can my cat hear it?
  • Part 5 - Pre-Surgery Shopping
  • Part 6 - Day of Surgery
  • Part 7 - Recovery
  • Part 8 - Steri-Strips
  • Part 9 - Device Sttings
  • Part 10 - Effective Settings

RNS Discussion

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  • Part 3
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  • Part 5

Medical Links

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  • The Epilepsy Diet Made Simple
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  • Seizure Study - RNS
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Epilepsy Blogs

  • One Brain Fart at a Time
  • Living Well With Epilepsy
  • Diary of a Space-bound Epileptic
  • Epilepsy C
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  • E. is for Epilepsy
  • A Stone Made Smooth
  • My VNS Experience
  • Coping With Epilepsy
  • Epilepsy Coming Out
  • LWE Homepage
  • Seize This
  • VNS - a Patient's Point of View
  • Living Well With Epilepsy

Informative Posts

  • VNS v. Airport Screening
  • Removing Steri-Strips
  • Fisrt Aid Diagram

Groups and Support

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  • Epilepsy Support NC
  • Yahoo Epilepsy Group
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  • My.Epilepsy.Com
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Epilepsy Awareness

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