Saturday, August 26, 2006

Health Fair - Part I

We got our group together today and went to a health fair in Lexington. It went extremely well. The five of us distributed a wealth of information about epilepsy. We spoke with at least 200 people.

I think what surprised me the most was how many people either had someone in their immediate family or knew someone with epilepsy; a boss, friend, co-worker, student.. I was also surprised at how many people we met that had epilepsy. It was fantastic to share experinces with them and speak about different medicines and treatments avaiable.

We met a girl that had been diagnosed with epilepsy less than a year ago. She was a bit shy about speaking about it, but Christa was able to get her to open up and have a good conversation with her. It was a very hot day and she was worried about having a seizure. We were all glad that she didn't let this stop her from having a go at the climbing wall.


minclem said...

Well done! You and your wife are doing very commendable work. It's so important for these younger people to talk with others who share a common thread. My daughter and I were in Dr. Dean's office several months ago waiting for a change in her VNS. I noticed a woman walk by with the tell-tale scar on her neck. I'm certain I wouldn't have been aware of it had I not seen my daughters. Anyway - it was a Friday afternoon and we waited a very long time. There was a pretty woman in her mid twenty's, I would guess, sitting across from us. She was waiting for her husband and son to come back for her, I think.... Apparently she saw my daughter's scar and they started talking. In no time at all they were comparing scars. It cracked me up and warmed my heart tremendously. It was only the second or third time she had talked to someone who understood in a way that her dad and I just don't quite get....She's 17 and is finally getting a glimps of the fact that just b/c she has epilepsy doesn't mean she can't do pretty much whatever she wants....

Thanks for what you're doing.


Emeriol said...

Glad to hear your daughter was able to find someone to speak with about her VNS... the sensation it causes is definitely unique. And the reaction you get from others when you disclose that you are have a VNS can range from excited interest to barely masked revulsion.
As for providing support and promoting awareness, we are looking for more people to help bring awareness and educate others about epilepsy. The next event we are planning is the Honey Bee Festival in Kernersville. If you, your daughter, or husband would like to come & help, please contact us. In addition, we hold a monthly meeting at the Epilepsy Institute. Interestingly enough, half of us have VNS implants, and the other half are caretakers. Check out our website for more information: