Living With Epilepsy

This is a blog about epilepsy. I have lived with seizures for 25 years now and I want to share my experiences to allow others with epilepsy a chance to compare their experiences to mine and to allow those without epilepsy to understand further the condition and how it effects one. I had the VNS device implanted 4 years ago and have posted on that extensively. Please feel free to comment and I will try to respond.

Monday, February 26, 2007

Heros and Self Loathers

Paula Apodaca wrote an excellent post on her blog E. is for Epilepsy about her personal reflections about famous people affected by seizure disorders. Here is a snippet, but read the whole thing...

For my own part, I can't say I feel better about myself knowing there have been famous or historical persons with E., but I do find reading about them as interesting as their works.

Of the ancients, Julius Caesar and Socrates are presented most frequently. Napoleon Bonaparte is often pointed out, but unfortunately, the only lesson I took away from Napoleon's story was that his E. betrayed him in the end, at Waterloo.
I liked writers with E. much better. Fyodor Dostoevsky filled my adolescent hours with great drama; Edgar Allen Poe, entertained me with horror stories; Count Leo Tolstoy made me cry.
Posted by Unknown at 2/26/2007 01:03:00 PM
Labels: E. Is for Epilepsy, Famous People with Epilepsy

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What is Epilepsy

Epilepsy is a disorder characterized by recurring seizures, which are disturbances in the electrical activity in the brain. Seizure types range from a momentary disruption of senses to a loss of consciousness and violent movements that can last for minutes. There is no single cause for epilepsy; however epilepsy can sometimes be associated with an illness, head injury, or abnormal brain development. It is estimated that 1-2% of the population has epilepsy, and of those, approximately two-thirds respond well to medical treatment.

My VNS Settings

  • Output Current: 1.25 mA
  • Signal Frequency: 20 Hz
  • Pulse Width: 130
  • Signal On Time: 21 sec
  • Signal Off Time: 0.8 min

Living with it...

  • Epilepsy.com
  • Epilepsy Connect
  • Epilepsy Foundation
  • First Aid
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  • WikiEpilepsy
  • Epilepsy 101
  • Fit2beParents

Survivor's Guide to VNS

  • Part 1 - To Cut or Not to Cut
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  • Part 4 - Can my cat hear it?
  • Part 5 - Pre-Surgery Shopping
  • Part 6 - Day of Surgery
  • Part 7 - Recovery
  • Part 8 - Steri-Strips
  • Part 9 - Device Sttings
  • Part 10 - Effective Settings

RNS Discussion

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  • Living Well With Epilepsy

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