Sunday, March 13, 2011
Living Well With Epilepsy
Here is a shout out to Living Well With Epilepsy, a new blog by Jessica Kennan Smith. The blog has some great insights into the funding disparities between other conditions and epilepsy. Although just as many people die each year from epilepsy as from some other diseases, epilepsy receives a fraction of the funding of most other common conditions.
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8 comments:
I am so glad that there are several resources now to research epilepsy. When my daughter was diagnosed with LGS 22 years ago I did a lot of research but it was difficult to find. I still try to do research for anything new and it is much easier and I don't feel like I am so alone, another site I have found with some great information is www.epilepsyconnect.com .Thanks for sharing your experience.
Thanks for setting this page up. I am starting to blog a little, and it is nice to see that people are not ashamed of their epilepsy either! people used to tell me to just "not tell." So I decided to tell everyone! Diagnosed with TLE in '95, had the VNS put in in '04. Down to less than 10 complex-partial seizures a month!
Thanks for posting. I wish you both the best with finding ways to deal with the seizures.
Cheers!
Scott
Scott,
Thanks for the shout out! Let me know if there are topics you or your readers would like to see covered at Living Well With Epilepsy!
Best,
Jessica
Founder
Living Well With Epilepsy
http://livingwellwithepilepsy.com
Yes, she has an excellent blog!
I have some info I bet you would like very much. I found something that has helped me and others that i know. Listing to Barouqe and Classical music, Mostly J.S. Bach and Mozart. It helps reduces the time one is in a seizure dramatically and what seems to prevent seizures. Scientist have found this out too. Some music, with Ostinato in it, can induce a seizure. I have much info on my blog beet9hoven.blogspot.com about this and why it works. It is way to much to share in a comment. I hope you find something that will help, i know there is somthing in there that can help. best of wishes to you.
Hi Everyone. We work for a company that is dedicated to letting people know about opportunities to participate in clinical research studies. We are currently working with doctors across the US to find people who have partial onset seizures that are not controlled through their current medications. If you want to learn more, visit www.seizureclinicalstudy.net . If you’re not familiar with clinical studies, there are a lot of resources out there that can explain the process more in-depth, one of which is http://clinicaltrials.gov/ct2/info/understand .
Hi
My name is Jenna and I came across your site. This is a great site. My fiance, has epilepsy and is on medication for it, which is helping him not to have seizure's and hasn't had one for a couple of years. I am hopping he never has one, because I don't know what to do if ever has one, and would probably be really scared, as I myself have developmental delays and a life threatening disease.
I love it when people sign my guestbook. www.miraclechamp.webs.com
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