Living With Epilepsy

This is a blog about epilepsy. I have lived with seizures for 25 years now and I want to share my experiences to allow others with epilepsy a chance to compare their experiences to mine and to allow those without epilepsy to understand further the condition and how it effects one. I had the VNS device implanted 4 years ago and have posted on that extensively. Please feel free to comment and I will try to respond.

Friday, June 09, 2006

A Little Extra Sparkle

A new blog, A Little Extra Sparkle, posted this quote refrenceing epilepsy from the book of Matthew:

Matthew 4:23-24
And Jesus went about all Galilee, teaching in their synagogues and preaching the gospel and healing every disease and every infirmity among the people. So his fame spread throughout all Syria, and they brought him all the sick, those afflicted with various diseases and pain, demoniacs, epileptics, and paralytics, and he healed them.
Posted by Unknown at 6/09/2006 10:16:00 AM

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What is Epilepsy

Epilepsy is a disorder characterized by recurring seizures, which are disturbances in the electrical activity in the brain. Seizure types range from a momentary disruption of senses to a loss of consciousness and violent movements that can last for minutes. There is no single cause for epilepsy; however epilepsy can sometimes be associated with an illness, head injury, or abnormal brain development. It is estimated that 1-2% of the population has epilepsy, and of those, approximately two-thirds respond well to medical treatment.

My VNS Settings

  • Output Current: 1.25 mA
  • Signal Frequency: 20 Hz
  • Pulse Width: 130
  • Signal On Time: 21 sec
  • Signal Off Time: 0.8 min

Living with it...

  • Epilepsy.com
  • Epilepsy Connect
  • Epilepsy Foundation
  • First Aid
  • Responding to Seizure
  • First Aid Diagram
  • WikiEpilepsy
  • Epilepsy 101
  • Fit2beParents

Survivor's Guide to VNS

  • Part 1 - To Cut or Not to Cut
  • Part 2 - Activities
  • Part 3 - Does it work?
  • Part 4 - Can my cat hear it?
  • Part 5 - Pre-Surgery Shopping
  • Part 6 - Day of Surgery
  • Part 7 - Recovery
  • Part 8 - Steri-Strips
  • Part 9 - Device Sttings
  • Part 10 - Effective Settings

RNS Discussion

  • Part 1
  • Part 2
  • Part 3
  • Part 4
  • Part 5

Medical Links

  • CW Hemp
  • The Epilepsy Diet Made Simple
  • Epilepsy.Com
  • Seizure Study - RNS
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Epilepsy Blogs

  • One Brain Fart at a Time
  • Living Well With Epilepsy
  • Diary of a Space-bound Epileptic
  • Epilepsy C
  • Epilepsy Cures
  • E. is for Epilepsy
  • A Stone Made Smooth
  • My VNS Experience
  • Coping With Epilepsy
  • Epilepsy Coming Out
  • LWE Homepage
  • Seize This
  • VNS - a Patient's Point of View
  • Living Well With Epilepsy

Informative Posts

  • VNS v. Airport Screening
  • Removing Steri-Strips
  • Fisrt Aid Diagram

Groups and Support

  • Epilepsy Outreach
  • Epilepsy Support NC
  • Yahoo Epilepsy Group
  • Vns Message Board
  • Yahoo Epilepsy Help
  • My.Epilepsy.Com
  • Sharing Our Days
  • Brain Talk Communities

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  • Awareness Wristbands

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